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Update 3/9: MRI results

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Carefree.

Glad to celebrate a good day. Tumor is still there, but reports show no growth. Also, as an added bonus, the radiologist commented that Imm's spine looks straight and normal! She's still at a greater risk of developing scoliosis, but there's no sign of that right now. 

Thank you for your prayers; we scan again in September. Please join us in praying for Tiny's back, that it will remain straight and strong as she grows, that she will be protected from further complications because of this stupid tumor, that she can always run, skip, and jump without a care in the world.

#teamimogen #imogenclaireneedsprayer #curechildhoodcancer

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Big day today. We are headed to the oncologist to get the results from last Monday's MRI.  Obviously, we are praying for healing; short of that, no growth. We will update when we know! #teamimogen #imogenclaireneedsprayer #curechildhoodcancer

Update 3/2/15

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Quick update: Imm did amazing yesterday. She was very brave, and scans went well. We will find out next week what to make of all the results. Thank you for your prayers! #teamimogen #imogenclaireneedsprayer #curepediatriccancer

Update 3/2/15

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Update 3/2/15:

At CHOA for Tiny's MRI. The last one we took showed growth in a couple areas, so we moved scans up from 6 months to 3. Some poor scheduling meant that we couldn't do our normal thing, with laughing gas to make the pokes easier to handle. So, we are up in Kennesaw early. But it has been a blessing–as they tend to come in disguise–and we were afforded a royal welcome from @thejoymarket's parents. Such wonderful, loving people. 

So, we will not be expecting results until we meet with our onc next Monday. We ask for your prayers for today, that Imm will not be afraid of the pokes, and that everything goes well with sedation and the MRI. 

#teamimogen #imogenclaireneedsprayer #pediatriccancer #curechildhoodcancer

Update 12/19

Ok, so we got our update from the oncologist. Counts went back up slightly, but are within "new normal" range. The radiology board has concluded that the tumor is larger in a few areas on the right side, and possibly smaller in another area. It's all a matter of millimeters, so whatever's going on, it's slow. 

What does this mean for us? Well, nothing, right now. We're still monitoring, and have moved up her MRI to 12 weeks. Immy has been having on-and-off leg pain again, so it could be connected. 

Where do we stand, treatment-wise? Well, if things were to get worse: chemo isn't really an option anymore, because Imm didn't really respond to it the first time. So, our only real option would be more surgery—very dangerous, morbid surgery. So, the plan is to continue monitoring, unless she starts experiencing adverse effects from the cancer. 

We feel fine; we're not worried. The oncologist isn't thinking it's an emergency, and she feels confident we'll know more once another scan is under our belt. 

#teamimogen #imogenclaireneedsprayer

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Update 12/17/14

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Christmas at #CHOA.

Sorry we didn't update yesterday, but Immy did great. The only issue was having to get poked THREE times before the IV worked. 

Basically, there's not a lot new to tell. We will know more by the end of the week, but basically every radiologist that has ever looked at Tiny's scans got in a room to discuss what they think is or isn't happening, because the latest guy reported that the tumor grew by millimeters here and there. The oncologist doesn't think it's relevant, so they'll duke it out and let us know. Yeesh. We should also find out her urine counts on Friday, which will tell us a good bit more about how we are trending. We feel good, it's just more non-answers than answers; kind of par for the course. But from what we can see, she is healthy, happy, growing, and full of joy. Thank you for your continued prayers and notes of encouragement. They mean so much to us, still.