Friday, December 19, 2014

Update 12/19

Ok, so we got our update from the oncologist. Counts went back up slightly, but are within "new normal" range. The radiology board has concluded that the tumor is larger in a few areas on the right side, and possibly smaller in another area. It's all a matter of millimeters, so whatever's going on, it's slow. 
What does this mean for us? Well, nothing, right now. We're still monitoring, and have moved up her MRI to 12 weeks. Immy has been having on-and-off leg pain again, so it could be connected. 
Where do we stand, treatment-wise? Well, if things were to get worse: chemo isn't really an option anymore, because Imm didn't really respond to it the first time. So, our only real option would be more surgery—very dangerous, morbid surgery. So, the plan is to continue monitoring, unless she starts experiencing adverse effects from the cancer. 
We feel fine; we're not worried. The oncologist isn't thinking it's an emergency, and she feels confident we'll know more once another scan is under our belt. 
#teamimogen #imogenclaireneedsprayer


Wednesday, December 17, 2014

Update 12/17/14


Christmas at #CHOA.
Sorry we didn't update yesterday, but Immy did great. The only issue was having to get poked THREE times before the IV worked. 
Basically, there's not a lot new to tell. We will know more by the end of the week, but basically every radiologist that has ever looked at Tiny's scans got in a room to discuss what they think is or isn't happening, because the latest guy reported that the tumor grew by millimeters here and there. The oncologist doesn't think it's relevant, so they'll duke it out and let us know. Yeesh. We should also find out her urine counts on Friday, which will tell us a good bit more about how we are trending. We feel good, it's just more non-answers than answers; kind of par for the course. But from what we can see, she is healthy, happy, growing, and full of joy. Thank you for your continued prayers and notes of encouragement. They mean so much to us, still. 

Sunday, December 14, 2014

Update 12/14


What a difference a year makes. Immy last year vs. this year at the kids' Christmas bell thing. 
Tomorrow morning, we go in again for an MRI, to see if the tumor has grown or changed since earlier this year. It's always a stressful and anxious time, and the mornings can be difficult for her (not allowed to eat or drink anything). Thank you for your prayers and continued support!
#TeamImogen #imogenclaireneedsprayer #pediatriccancer