Monday, September 30, 2013

Update 9/30 :: Redman, Houses, and Poop

A LOT has happened in the last two days. After the blood transfusion, Imogen's H&H counts (red blood cells and whatnot) went up to a good point, but she was still having fevers. So, her antibiotic was switched from Zosin to Vancomisin (aka Vanc).

For the record, I neither know nor care how these are actually spelled.

I had actually stepped away for a little bit to take care of some househunting (more on that later).  When I got back to the Aflac ward, I heard screaming coming from down the hall. It was unmistakably my Immy. As I threw the door open, I saw Imogen, as red as a strawberry.  Tammy and the nurse were trying to get her to take some medicine, but she was screaming and clawing at her own skin. It was possibly the saddest moment of this whole experience for me.

The medicine they were trying to give Imogen was Benadryl. It turns out that she had a reaction to the Vanc. Rather, it was a side effect known as "redman syndrome" that can happen to people taking the antibiotic.  The skin gets bright red (duh), and the patient gets itchy all over.  Fortunately, we were able to get Imm to swallow the Benadryl, and the itching and redness subsided. 

I undestand why they call us "patients" now. So much of this has been a process of waiting on medicine to kick in, waiting on temperatures to drop, waiting on the Lord to see how and where He shows Himself faithful.

The next morning (Sunday), Imm's blood cultures came back again negative for bacteria (yay), but her platelet count was less than 10. For reference, you and I are considered in the low range if we have a score of 140.  

So, we got a platelet infusion, which looks like grapefruit juice, in case you were wondering. We found out this morning that they helped her counts a lot, and she's back in a "normal" range– not you and me normal; cancer-normal– for those.  The tests are still coming back negative for bacterial infections, so it looks like a random virus that is just playing itself out. She has to be fever-free for 24 hours before they'll let Imogen go home. 

Today has been a pretty nice day. It feels like we're finally getting our Immy Claire back. She has an appetite, she's walking around the hospital, and SHE FINALLY POOPED. That was a minor, but constant, concern for the last six days. 

IN OTHER NEWS!!! We did sell our house. Everything is moving along swimmingly with that, but that means we're trying to find a house. We believe God sent us a buyer at the right time, and we believe (aka desperately hope) that the same will be true of where we're supposed to go next. In fact, maybe you know someone in the Kirkwood/Decatur area that is selling or would rent their house. In case you do, we're looking for something that is either newer or updated (old stuff + cancer is not a great mix):

1. City schools of Decatur is our dream from heaven; but nice parts of kirkwood will do, too. :)
2. 3+ bedrooms
3. Decent yard space for playing
4. Swim/tennis?

It might even be a solution for a few months or a year.  Anyway, email me at ajpassman@gmail.com if you know of anyone who has lived in their house in Oakhurst for 50 years, and wants to almost give it away!  (or anything else you may know of)

Thanks again! I'll try to update in the morning.  We should be just monitoring her as she plays, and hoping for no fevers, as that would reset our 24-hour clock for staying admitted.

Oh, as a final thing: we went outside yesterday to have a little picnic.  Can you tell from my photo stream I thought she looked cute?



Saturday, September 28, 2013

Update 9/28 :: new robot

So last night was a little bit rough again, mainly because Imm's fever kept coming back every couple hours.

You may remember me writing about her port—"robot"—giving us some trouble. Well, Imogen started complaining again during the most basic of checks. For some kids, it's normal, but she's never had an issue with antibiotics going in or the line getting flushed. So, we asked them to get her a new "tail." It was not a pleasant experience, to be sure, but we noticed an improvement right away. It looks like there was a very slow leak that stung every time something went in.

Imogen's blood counts dropped again, so they're giving her a transfusion now, and monitoring her platelets and fever. We'll be here at least through tomorrow. If her fever persists, they might start getting more aggressive with it on Monday, with different medicines and body scans. The hope here is that her counts will go back up, which should boost her immune system, which should stop the fevers.
I'll keep updating as we know more.




Friday, September 27, 2013

Update 9/27 :: Don't make plans for the weekend

UPDATE 4pm: ok folks, we need some prayer. Imogen's fever has jumped up to 104. They don't want to give her Motrin because it decimates her cell counts, so we're in rock-and-hard-place mode. We need this fever to drop.

Last night, we had a little bit of an episode, and Imogen's fever went pretty high again.  At around 4am, the nurse came in to get blood cultures. They can often do it without her even waking up, but she woke up pretty ticked.  She cried a bit and vomited, saying that it was hurting her, that her stomach was hurting her.  Part of the problem was the time in the morning, but she was pretty hot as well.

The rest of the night, or what was left of it, went well.  Her fever broke and has not come back, and it looks like neither a blood nor platelet transfusion is necessary at this time!  While that's great news, it doesn't mean we get to leave quite yet.

The cultures still came back negative for bacterial infection, but Imm's white blood cell counts are very, very low. The plan moving forward is that we will be here until Saturday, maybe Sunday, as Imogen is monitored. Basically, we don't get to go home until Imm's counts go back up.  And until that time, she is prone to fevers.

Thanks again for the prayers. She has had a pretty wonderful morning, actually.  She had a craving for strawberry yogurt, and has been playing with dolls and crafts since then.  We're just watching and waiting.  Pray that her counts bounce back, and she doesn't get fevers along the way.


Thursday, September 26, 2013

Update 9/26 - Monitoring

Imogen's fever is a bit back and forth, but she is on some antibiotics, and seems to be doing well.  As expected, her counts are low, particularly the white blood cells. They're still thinking the counts could drop more as the day goes on, so there's a chance we'll be operating out of the hospital for the next day or so.

We're not worried right now. Imm is sleeping on mom, dad goes back to work for a bit. We're just waiting to get more information from the tests and get moved over to the Aflac center (cancer city).

Thanks for praying! I will update this post throughout the day.

UPDATE 10:45a: Imm ate a bit, but fever still spiking, as high as 102.5º.  Imogen has said a couple of times that her leg hurts. Once about the right, a couple times for the left leg. Leg + fever is a bit confusing; it could be the tumor moving along nerves, or it could mean something completely different. Hard to tell. We're waiting on the cultures to see if there's any bacteria in her system.

UPDATE 4:30p: Once again, we've been pretty up and down with fever. It went all the way up to 103º this time, but Imogen seems to be doing ok now. The results came back negative for bacteria, which is excellent news.  Because "apparently in the medicine community, negative means good."

One quick scare we had was with Imm's port. The needle got a little dislodged, and the fluids were pooling up underneath her skin.  The nurses were going to have to deaccess, then reaccess her again to get it flowing correctly.  It's not a painful thing, but imagine being three years old with that going on. Thankfully, they were able to get it corrected by doing the medical equivalent of jiggling the handle, and all seems to be well on that front.

The biggest bits of news are that we will be sleeping here again tonight, [a room opened up in cancer city, praise the Lord] and Imm will need a blood transfusion to get her counts to bounce back. Pretty simple, actually. They just hang up a bag of blood, and faster than you can say Edward Cullen, she perks up and feels better.  Hopefully.

sleeping


Wednesday, September 25, 2013

Back to the hospital

Quick update. Imm spiked a fever this afternoon, and it persisted into the evening. We called the hotline, and we're going in for the night.  

We're not thinking it's serious at this point. Just one of those things we have to do, and it's Day 10 after her last round of chemo, so we're expecting her counts to be low.

We definitely appreciate your prayers. 

Tuesday, September 24, 2013

Update 9/24


 If you took any pictures at Johnny's Pizza, please email them! And if you're praying for Immy, send her an email at imogenclairepassman@gmail.com, even if you don't know us at all. I have plans for these, and I'd love for anyone who has been keeping up with us to be included. Also, I've heard a few people might be interested for a Team Imogen shirt. Yes? More on that later. 

The pizza night with Johnny's was a huge success! Imogen and Aaron had a blast, kids were getting faces painted, balloons were popping left and right. We can't thank Sarah and Kari and the team at Johnny's enough for making it special. The best way I can sum it up is by telling you what I heard to be true: in Lawrenceville, you guys made Johnny's run out of food before 9pm. Here's what Grayson looked like:


That's bonkers. Thank you all who came out, even if we didn't get a chance to hang out. The greatest joy for me was seeing so many people from the pieces of my own story gathered in one place for a unified purpose. I was truly blessed by each and every person's presence. Thank you from the bottom of my heart. 





In other news:

We've had a wonderful Friday thru today, as far as Imm's health is concerned. She's been playing, laughing, telling jokes. The weather is gorgeous, and she has tons of energy. And an appetite for pizza and cheese. Aaron is as cute as ever, and weighs as much as me now. Imm felt good enough to go to the mall, so we rode the merry go round. Aaron screamed with joy the whole time. Screamed, y'all. 



Physical therapy is going really well. Jeff, Imogen's therapist, says she is making huge strides (literally?) and believes that we're doing the right things to help her at home (whew). Imogen's progress is not without attitude, of course. "She is very sassy and independent," says Jeff. We know, and we wouldn't have it any other way. He only thinks she'll need to go a few more times because she's making enough progress at home. 


Many have asked details about our treatment, so here's the latest schedule:

Oct 7,8,9- chemo round 3

Oct 28,29, 30 - chemo round 4

Nov 15. Re-scan, MRI

So, she has six more to go before we hit the pause button and do some re-imaging. After that, the white coats have another batch of 4 cycles tentatively scheduled. A bit of a coin flip, because we'll have to see what the scans look like. As far as the chemo goes, we'll be admitted overnight to the hospital on oct 7 and Oct 28, as the first day is a little more intense, and Imogen will need to be monitored. We will go home on Tuesday and come back for an hour on Wednesday. That's how both remaining rounds should go. 


In other other news, we are under contract for our house. Inspections have been completed, and we officially close late October. For so many of you who have offered to help us in so many ways, here's where we might take you up on it. Stay tuned for a couple Saturdays where we'll need trucks and help dumping and goodwilling stuff. 


That's it for now. Let the cuteness reign. 


Monday, September 23, 2013

Update 9/23 :: pizza, pizza!

So Immy had a great weekend! After her last round of chemo, she was pretty sick for the next few days. For me, it was one of those times where we really felt like this is the real deal. Maybe even more than the hair, actually.

After a few days, though, Imm's appetite and energy came back, and she didn't get sick again on Saturday or Sunday. Yay!

Quick reminder: tonight is pizza night at Johnny's Pizza in Grayson and Lawrenceville! Tell your friends, see you there!


Wednesday, September 18, 2013

Update 9/18

After Imogen's rough night and having to go back to the hospital, she was actually able to sleep, and we were released. Yay! Continue to pray for her as she is still having spells of nausea. She slept great last night, but woke up a little sick this morning.

Next Monday is pizza night for Imogen at Johnny's Pizza in Grayson and Lawrenceville, so join us if you can! RSVP here

The emails we have received for Imogen are beautiful. We're planning to take them and have them printed in beautiful typography, so she can read them and keep them. If you've been praying for and thinking of Imogen, take a moment and send her a note at imogenclairepassman@gmail.com. 

More to come, just wanted to keep everyone updated. 

Tuesday, September 17, 2013

Quick Update :: Readmitted for nausea


I'll update more soon, but I wanted to give a quick heads up and a request for prayer for little Imm.  Yesterday was a pretty intense day of chemo, with a couple new drugs and things happening in quick succession.

After arriving home, Imogen began vomiting, and the anti-nausea medicine we were given (Zofran) wasn't really working.  So we took Imogen back to CHOA, where they gave her new stuff (Adavan?) that seemed to do the trick.  She slept for the rest of the night.

Everything seems to be ok, but they wanted us to bring her in so Imogen wouldn't get dehydrated.  With this batch of chemo, her blatter could be at risk of infection if she did get dehydrated.  We're good for now, I think.

Pray for the medicine to work and for these next three weeks to go more smoothly than the doctors expect.  Again, this round is way more intense, so they expect her to be a lot more achey and sluggish as her counts dip low.


Sunday, September 15, 2013

Update 9/15 :: tomorrow, tomorrow




"Daddy, do you like my haircut?"

She's been asking me that lately. Of course, I think she looks beautiful. But I have found myself messing with it and obsessing over the little white hairs that go everywhere and at different lengths, and thinking that I need to cut it so it looks better. I can't help it. Maybe it's part of adjusting. Maybe it has more to do with my own insecurities. 

The thing is, I actually think she is pretty cute with no hair. It's just so, you know, cancer. Earlier today, though, Imm was hiding under the big armoire that holds all the toys. It was one of those times where she got herself in, but couldn't get out. I moved some toys out of the way and helped her keep her head down as she crawled, and I was overwhelmed with love and adoration for this big, beautiful, bald head that was coming right at me. She loves her haircut and think it's just great that a) some other little girl is apparently borrowing it, and b) because it matches daddy's haircut.

In case you haven't seen, Tam also took hers down and got a smokin' hot pixie cut. (Thanks, Robin!)


[if you're on Instagram, I'd recommend following tammypassman and ajpassman. We actually do mini-updates on there throughout the day.]

Tomorrow we go in for Round 2 of chemotherapy. This cycle is only one day, so hopefully we'll be home morrow night. Pray for our rest, pray for great-grandma, who is in town and is watching the monster sweet Aaron. 

We have other big news, because life has a habit of moving right along. No, we're not pregnant. But our house is under contract! It's a long story, the timing is crazy, and it's bittersweet, but we're excited about where the Lord has us going. We don't know where that is, but it's exciting nonetheless. We had our inspection on Friday, so we're hoping that went well.

Thank you all for the kind offers to help. Again, I apologize to anyone I have not replied to yet; I will. I'd love to post every meal, every gift we've received and shout your names from the rooftops, but that's not everyone's style. And I'd undoubtedly leave some out. 

As soon as I get time, I have a couple stories from our first stay that I really want to share with you. I learned and felt a lot during that time, and it's cathartic to get it out there. 

A quick reminder for those who are local: pizza night at Johnny's Pizza in Grayson and Lawrenceville on Monday 9/23. It's a night for Imogen, and I'm mostly excited about getting my face painted by the clown. 

And now, cute pictures of the kids from today!



Wednesday, September 11, 2013

Update 9/11: leaving to come back again

We're home again. Imogen had no more fever issues ,n there was no bacteria on her port, and her blood counts were back in the upswing. So, check 'em all off the list! Thanks to you all who we're thinking of us. Fortunately, we were allowed to go back home until Monday, when we go back in for Round 2 of chemo.


Before we went home,though, another couple of folks were added to the no-hair club. Jon & Amy brought us dinner, and just happened to have some clippers with them. I thought it was a #3 buzz I was getting. Turned out to be a #1. Jon also joined in on the fun. Imogen even got to do some of the cutting! Pics are below. 


Once again, we've been blessed beyond comprehension by the offers of support and love. I promise we have read every single word of kindness, even if I haven't yet had a chance to respond. And thanks to the army of mommas who have offered to watch Aaron at a moment's notice.


Remember Mon. 9/23, is Imogen night at Johnny's Pizza in Grayson and Lawrenceville. It will be a blast. 


Monday is Round 2 of chemo. Keep us in your prayers. 


Continue to pray for Imogen's walking to be restored. 


Continue to pray for complete healing and for the tumor to disappear (even if you're not into that sort of thing).  I get caught up in the day-to-day battles sometimes and realize that my expectations and hopes shift and diminish. Until it's gone, I'm praying for healing. 


It's ok if you've butchered Imogen's name up to this point. Lots of people do. We expected that, which is why we gave her Claire as a middle name, in case she ever tires of her parents' decision to give her an old Gaelic name while living in the South. For your consideration, there's no e at the end, and it's pronounced IMM-oh-jenn. That is all. 







Tuesday, September 10, 2013

Update 9/10 No.2: #WhoNeedsHair


They are keeping us at the hospital through the night to continue to monitor Imm, but everything is looking good.  No fever today, and her counts appear to be on the up and up. All great news. No bacteria on her port, either! Thank you all!

I was asked for the link to the GoFundMe site my classmates made, so here it is: http://www.gofundme.com/47bl0c

The biggest news for today is that Imm's hair is pretty much gone now. We were so thankful for the cute little bob Robin gave her, but even it was getting a little unwieldy. So off it came. And, I have to say, she looks awesome. Like, legit cutie. So cute that mom and I only got sobby once or twice. 


If you've seen the #ImogenClaireNeedsPrayer around, I had an irreverent thought to change it to #ImogenClaireNeedsHair and see if anyone noticed. Too soon, according to my better, more tactful half.

 Ok, that's it for now. Hoping to head home tomorrow! Thanks for the prayers! God is good. Oh, and shout out to Papa Tom, who already joined the hairless club today. 



Update 9/10 - Fevers, cultures, and hospitals, oh my!

We're back in the hospital for a couple days now.  On Sunday night, Imogen started to get a bit of a fever, and it wen't up to 100.8º. After some prayer and cool washcloths, it was back down within the hour, and she slept great.  We were pretty relieved.  Unfortunately, Imm's fever came back yesterday around lunchtime and went up to 101.6 at the house.

In case I haven't mentioned it, fevers can be very dangerous during cancer treatment.  A fever of 100.5 for more than two hours means come to the ER.  It can be nothing, or it can be a life-threatening infection or reaction.  Given those two extremes, they play it pretty safe around here.

So we came in and were admitted for the night. Thanks to those who knew and prayed for us, because the fever broke soon after we were here, and Imogen ate and slept wonderfully–though mom and dad were a different story...

We just got her blood draw results back, and they are pretty low.  Not alarmingly low for day#15 after chemotherapy, and not low enough to warrant a transfusion, but low enough to keep us here for another night.  So, we're back at our second home for the time being. She'll need another set of labs to get her counts tonight to see if they're back on the rise.

Things to pray for:
1. Pray that there is no bacteria on her port, which is often the cause of fevers. She's on antibiotics right now.
2. Pray for the urine culture we have to get. It will be unpleasant.
3. Pray for Imogen's platelets and some other things I can't pronounce to go up. If they go up, we go home.


A couple other updates:
Imogen's hair will be gone this weekend. It's coming out in huge clumps now.  We had our photo shoot yesterday with Paige Knudson, and it was Uh-mazing.  And it was perfect timing.  Check out a little sneak-peak she posted on Facebook (I put a couple at the end of this post, too).

Some of my friends from my MBA program at UGA set up a donation site for us. We didn't even know it went up. It's weird to ask for help, so I don't like to do it. Well, they kinda did it for me.  To all my classmates and others who have donated so far, thank you guys!  And thanks Mary Catherine for setting it up.

If you live in Gwinnett, mark your calendars for PIZZA on Monday, Sept 23.  In honor of Childhood Cancer Awareness Month, Johnny's Pizza in Grayson and Lawrenceville is having a fundraiser night for us.  Big thanks to Kari and Sarah for setting that up, and to Matthew Shelnut and his crew at both locations for their generosity. Spread the word!  Oh, and the Grayson location has Twinklz the clown who will do free face painting and balloon animals.  Should be a great time for families!






Sunday, September 8, 2013

"This is our life" –Update 9/8

As I write this, Imogen's temperature is coming in at 100.4.  We'll measure again in an hour. If it hasn't gone down, we're spending the night in the hospital. To say that our schedule–and even the concept of a schedule– has changed in the last month is an understatement.

It's been a great week at home, really. Imogen has done better with her walking, and this is the first sniff of a fever we've had. We're still in for a dog, but that didn't stop Imogen and Aaron from loving the snakes and lizards at the pet store.


The biggest thing of note is that Imogen's hair has started falling out in the last few days. And it's going quicker than we realized. Imogen, always the generous one, has liked the idea of another little girl needing to "borrow" her hair for a little while (and someone needs to borrow mine, too.) Today, it started coming out at the slightest touches.  So, our schedules change again.  A family photo shoot that was scheduled for next weekend is now tomorrow morning at 9am.  She probably won't have much by Friday.

One fun upside is we got to get her a a sassy haircut before it all goes. We weren't planning to do it so soon, but it was everywhere: in her face, on the floor, all over our clothes.  We went with a posh reverse bob, and I think it fits her personality quite well.


Because of the rise in temperature, Tam and I decided it was a good idea to go ahead and have that emergency bag packed after all. As we picked items for future overnight stays, I had the realization that this is our life now. The slightest aberration in Imogen's temperature, behavior, coloring or energy is a potential game-changer. I think we're ready for it, I do, and I'm certainly not complaining. If you've ever met my kids, you knew they're more than worth it. It's just different. I guess it's just made me look at commitments and grand plans differently, a "today has enough on its own" type of thing.

The week or so is pretty big, then.  We expect to do the head shaving.  It's a good thing we decided to spend Saturday morning letting Imogen pick out all the head decor she wanted at Claire's. She loved it.

Oh hey. Imogen's temperature is back down! Looks like our schedule stays the same for the time being. We'll post pics soon. You can bet they'll be cute. 

Thursday, September 5, 2013

Throwback Post - Our first few days




There's a ton that happened while at the hospital that I'm still processing and want to share, so I figured I'd do my first one in honor of #tbt.

Before we knew about the tumor, before we knew it was cancer, before we knew we'd be living at the hospital for a stretch, one of our first visits came from our lovely friends Jon and Amy.  It was a great visit, and they asked if we wanted/needed anything.  It would not be the last time we heard that question.  But I jokingly said that Imogen would like a singing performance.

Later that evening, this pops up on our phone:

Imogen laughed and wiggled in the bed as we sang it together. It was one of the first, and one of many beautiful moments we shared as we walked forward into the days that lay ahead.  In fact, living water was a recurring theme from more than one person during our stay. And when Imm started to get chemo for the first time, it was a word that we held onto and claimed for her, that she would be strong "like a well-watered garden, like a spring whose waters never fail."

Tuesday, September 3, 2013

Psalm 61



Nothing new today.  Imogen continues to do well.  I just wanted to share a Psalm that has been especially poignant to me recently. I highlighted my favorite parts.

Psalm 61
Hear my cry, O God;
Give heed to my prayer.
From the end of the earth I call to You when my heart is faint;
Lead me to the rock that is higher than I.
For You have been a refuge for me,
tower of strength against the enemy.
Let me dwell in Your tent forever;
Let me take refuge in the shelter of Your wings. Selah.
For You have heard my vows, O God;
You have given me the inheritance of those who fear Your name.
You will prolong the king’s life;
His years will be as many generations.
He will abide before God forever;
Appoint lovingkindness and truth that they may preserve him.
So I will sing praise to Your name forever,
That I may pay my vows day by day.









Monday, September 2, 2013

Update 9/2: Walking Together


I went back to work on Friday, and I must say I didn't get too much done. It was great to see all my coworkers who have been praying for us for the last couple of weeks.  The funny thing is, everyone was wearing yellow shirts, even on a video conference call I had with the lovely folks at Hampton Creative.  I had no idea why, until my bossman Steve informed me that yellow is the official color of pediatric cancer.  Probably something I should've known. Anyway, blown away by that, and I continue to be floored by the support, prayers and help from family and friends.

I am loving the prayers that have been sent so far to imogenclairepassman@gmail.com.  So great to read, and I can only imagine what it will be like for Imm to read them later. Keep 'em coming!


The weekend has been a whirlwind.  A good one.  Imogen has done incredibly well since we got home.  She hasn't gotten sick yet, no fevers, and she has been walking more and more. There's still a pronounced limp, but she is now walking on her own (and is very proud of herself, as you can imagine.) She even went down the slide by herself.  We definitely still have a long road with her legs, and we're trusting she'll regain full functionality.

Speaking of that, Imogen's great grandma and her friends up in Ohio are all wearing pretty pink bracelets for Imm, there might be an Imogen night at one of our favorite pizza joints soon, and  our house is overrun with bunnies, bears, princess books and all other sorts of stuffed lovelies.

There's something about being home. We decided that the wheelchair isn't even allowed inside the house, and that has surely paid off. Aaron is as active and hungry as ever, and I believe that he's helped Imogen settle in even more by taking away some of the attention.


A couple of quick things to note:

1. For those who were interested in bringing us meals and run errands, THANK YOU THANK YOU! We're finding out that the day can get away from you with all this going on, and it's taking time to settle back into any semblance of normalcy. We still have no idea how to ask for or even organize the things we need, but it's a great problem to have!

2. For those who are constantly praying for us, THANK YOU THANK YOU! I'd ask that you add a couple people we are praying for.  A couple days before Imogen went to the hospital, we found out our neighbor Jill was also diagnosed with cancer.  Crazy timing, I know.  Please pray for her and her family as well.  Also, my coworker Caleb has had a crazy couple of weeks, as his beautiful daughter Leena was diagnosed with diabetes.  She's close to Imogen's age, and I know it's a huge life shift for them.

3. Tammy is awesome. Before we went to the hospital, our kitchen was getting some repairs and upgrades, so a lot was unfinished.  Yesterday, Tammy finished the backsplash grouting completely on her own.  Mad skills.

4. We like visitors, and we really like visitors who give us a heads up. :) Everyone's been great so far, so don't be scared of seeing us. I'll tell you if you should come by later, believe me.

5. Our routine is beginning. This week, Imm will have her first weekly blood draw, and her second round of chemo is in two weeks. We're hitting the days where she could still feel the chemo hit her, so pray for strength and no fevers!

Also, I hear that September is Childhood Cancer Awareness month. Go figure.  I think we can all agree that I'm very aware of it already.  That's about it. Hoping to post some stories and memories from our time at CHOA in the next couple of days.  These last two weeks have been the hardest of my life, but they've also been my proudest.  Proud of my family, proud of my friends. There is truly a peace and a joy that doesn't make sense without Jesus. There's nothing better than waking up with hope and seeing His hand in so many situations.  More on that later.  For now, I need to go to the store to get milk, and maybe some shirts in my new favorite color.

Slide buddies

Princess story time

Loved our visit from Sarah and her mom Kari