Thankfully, the doctor thinks that there is currently no problem. Right now, we're keeping a record of how often she goes #1 during the day, to see if she's peeing enough. Sorry, that was so non-medical of me. They want to see if she is *ahem* fully "voiding."
As we're finding with everything else, it's not an exact science. It depends, of course, on how much water she drinks during the day, and it's different for every kid. That's why they call medicine a practice. So, the plan right now is to wait until Feb 21, which is the date of our next MRI. They're going to take a few extra pictures/slides of Imogen's kidney while they're imaging the tumor and her spine.
We feel pretty good right now. It's hard to wait and feel like we're doing nothing, and we're not sure if we want to stay with our oncologist. I think she's a capable researcher and doctor, but she's not warm, caring, or invested in us, and Imogen's cancer is not her specialty. Pray for us with that decision. Also, we are open to your advice and suggestions with this, if any reader has any experience with this kind of thing. Every other cancer parent we've talked to has said, YOU SHOULD LOVE YOUR ONCOLOGIST. Frankly, we don't.
In happier news, Imogen's head is fuzzier every day. When you go through chemo, your hair won't necessarily grow back with the same color or texture. It's actually one of the fun exciting aspects of recovery. I'm open to taking bets for the following:
How will Imm's hair grow back?
My guess changes depending on the angle and the day. Yesterday, it looked quite dark. But she's noticing, and is adorable when she talks about it. Tonight, while she was taking a shower, she asked mom for some shampoo, because she said she has hair again; aaand, commence waterworks. I won't forget that moment for a long time. Here are a couple shots so you can see it!
Just my two cents worth....I think you should have an oncologist who specializes in the pediatric form of Immy's cancer (if there is such a thing). Sometimes doctors who are used to treating adults aren't as sensitive to the needs of their young patients and to the worry and stress of being a parent of a child with cancer. Praying that you find a doctor who will meet all your needs. Keeping Immy and your whole family in our prayers.
ReplyDeletepraying for those needs indeed!
ReplyDeleteand good grief that head of hers is the sweetest!!
I do not know y'all but I found you through a photo shoot you did with Paige. And I just keep crying at the gorgeous images. I will pray for y'all and keep up through the blog. Much love!
ReplyDeleteI agree with Mary. While there are doctors that do well with very young patients despite handling mostly adult clients, it still does not compare to the attention given by a doctor who specializes in handling child cases. Though there’s nothing wrong with going to the former, if you can find a more cordial one, that is. With regards to your visit to the urologist, it’s good that there were no additional problems on this visit. How is she doing nowadays? I hope she’s doing a lot better. Good day!
ReplyDeleteKate Davena | Dr. Gabal, M.D.