Friday, November 1, 2013

Update 11/1 : Home, Scans, Spooks


It's kind of fun being at a children's hospital during a holiday. Not more fun than home, but they do a good job at Scottish Rite. We had Halloween parties for three straight days, which was a welcome distraction. 


This cycle/round of chemo went as planned, and Tammy, Imm, and I all went home together on Wednesday. She was pretty excited to go.




*I tried to update as much as possible while at the hospital via Twitter and instagram.  Check the previous post to see the timeline.

And, I missed Aaron. That's one of the hardest things, especially for Tam.  So it was good to be with His Cuteness again. 



From the time we arrived home on Wednesday, Imogen Claire has had several spells of nausea. With the kind of chemicals she received this round, this was to be expected. But it still is hard to watch. Thank God, though: She is taking her medicine, which helps a lot, and she is happy and ready to play shortly after she vomits.

We spoke to the oncologist again, and here's what they're thinking: the chemo may not have shrunk the tumor, but it likely calcified, or matured, the tumor to the point that it's benign.  In a way, that's good and bad news together. Whereas benign is always better than aggressively malignant, it still means they believe the tumor to be wrapped around vital nerves.

We do trust our doctors and believe we're in good hands. We believe in medicine and scientific study. We are preparing for surgical and chemical solutions. But our prayer is for healing. Complete, final restoration. The scans have officially been scheduled for November 13-15.  Immy will get two scans, and MRI and MIBG scan.  The second one is the nuclear scan she got the first time.  So, mark that on your calendars.

We had a lovely Halloween last night.  Imogen was a dragon princess, and Aaron was a robot. It was great to meet a lot of the new neighbors, and we live in a very friendly neighborhood. Of course, it always takes me a minute to realize why they stare, why the other kids wonder if the baldness is part of Immy's costume.  It's like a silent movie Tammy and I get to watch over and over again everywhere we go– the look toward Immy, then to me and Tam, then back to Immy, then it hits them why all of our haircuts are short!  It doesn't really bother me.  I've seen a lot of other people's kids that still aren't half as cute as mine. #sorrynotsorry


By the way, thanks for reading this blog.  I'd probably write it even if you didn't, because it helps me process. But please know that we treasure the feedback, and even knowing that others are listening. I have had this passage quoted to me many, many times during this whole thing, but this was my morning reading yesterday:

Even the darkness will not be dark to you. 
The night will shine like the day, for darkness is as light to you. 

YOU created Imogen's inmost being. YOU knit her together. 
I praise you because Imogen is fearfully and wonderfully made.
AND YOUR WORKS ARE WONDERFUL.


I know that full well. 

Her frame was not hidden from you when she was made in the secret place. 
When she was woven in the depths of the earth, Your eyes saw her unformed body. 
All the days ordained for Imogen were written in Your book before a single one came to be. 

[so, upon seeing God's thoughts toward Imm, what else could my response be but...]


HOW PRECIOUS ARE YOUR THOUGHTS TO ME, OH GOD

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