Saturday, November 23, 2013

Update 11/23 - New directions, not done yet.

So, the last few days have been a whirlwind. After being uneasy about the doctors "we're done!" proclamation, we decided to reach out to other physicians for a second opinion.

We're thrilled with being done with chemo, but we know that there's still cancer on Imogen's spine and near one of her kidneys. The problem, obviously, is the tumor's location. Well, besides the fact that it exists at all.

So, we have asked several questions and spoken with our docs and others, and we're going in a new direction. After speaking for awhile with our oncologist on the phone, we decided that a PET scan and a surgical consult is the next step.  Here's why. Upon further review of our MRI with a second radiologist, it seems that the tumor is pressed up next to the ureter, which propels the urine from the kidneys to the bladder.

What this means is that it could continue causing urinary tract infections or other issues.  The general pediatric surgeon at CHOA has looked at the images and said that it might warrant a surgery to remove that part of the tumor, if it's accessible.

So, we're planning to hear from our oncologist and the surgeon on Monday, and we'll go from there. We're still sending our files to surgeons and oncologists across the country, so pray for us the next few days as we learn and decide what to do.

On another note, many of you probably know from my earlier post that we had to go to the ER on Thursday night, as Immy came down with another fever.  After spending a few hours in there, we were sent home late, and were told that it was ok to give Immy Tylenol, because her counts were really good. Like, 10x what they were during chemo.

She has been happy and well this weekend, so far, and is currently sitting with me as I type, asking me to go dance with her instead of "playing on the pum-pooter." I shall oblige.

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