Monday, March 17, 2014

Update 3/17 : Spirit Night and Oncological Adjustments

Don't make plans for dinner tonight.

Well, make them, as long as they include Chick-fil-a. Normally, I love St. Patrick's Day anyway, because I love harping on my diluted Irish heritage (much to the disdain of my real Irish "sister," Hannah.)

But today is even better because it is Spirit Night for Imogen at  seven Gwinnett Chick-fil-a's! See my last post for all the locations that are in on it. If you're in the area, stop by, grab a bite, and say "Team Imogen!"

Also, we will have t-shirts for sale, too! They're $15 and adorable:



I've had some of you ask how to get a shirt if you're not local. First, let me say thank you for loving an supporting Immy from afar. Second, I can mail you one. Just go to our GoFundMe page, and donate $20 or so to cover post, and leave your address in a private message.

Update time
After a lot of prayer and discussion  with Tam, we have decided to switch oncologists for Immy Claire. With all the uncertainty around the last PET Scan, we reached out to the doctor in Cincinnati to get his input. We feel very good about the decision to change, but there's definitely more concern about the increased counts and size. He has recommended moving up Tiny's next scan date to the beginning of April to see if the score comes back down or continues to climb.
Per his recommendation, we are going to see another oncologist here in GA to see if she is a better fit for us. Fortunately, she has more experience and expertise than our soon-to-be ex-doctors.
Please continue to pray for our wisdom as we navigate this next month. One of the nation's top experts in neuroblastoma just told us on the phone that this is hard to figure out, and it's not an exact science. So pray for peace, for sound judgment, and of course for healing.

2 comments:

  1. awesome!! can't wait to see how the lord blesses ya'll through this!! praying for PEACE, SOUND JUDGEMENT & of course HEALING!! love ya'll dearly xoxo

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  2. Praying to God for healing for Immy, also praying for wisdom and guidance as you make the necessary changes to get the best medical care for her. Praying for her new care team to be able to make wise decisions and also to be the supportive and empathetic experts you need. God grant you and Tammy peace and comfort in the days and weeks to come.

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