Update 3/8

The week of scans is behind us, finally! Imogen did great, and it made a world of difference that we got to use nitrous oxide again before the MRI.

Some updates on her counts:

Catecholamines/Urine counts:
The results from the latest sample was on par with previous results, as her HVA was 24.4 (compared to 24.9 in Feb) and her VMA is 11.3 (Feb was 11.8).  As far as the differences, they're considered the same.  So that's good news.


MRI:
Basically, the MRI looks the same, as far as we can tell. We met with our current oncologist, and he said everything looks stable. From here on out, we will only be getting an MRI in 3 months, unless something changes.

This seems to be really good news, as they're not concerned and the tumor is not spreading anywhere else. We're still a little uncertain because of the difference in the PET scans. The way each one was analyzed was completely different, so it's hard for us to figure out if anything changed. (For instance, this most recent PET noted a higher SUV score–aka malignancy–and seemed to identify it in more places).

Add to that the CUX1 results, and we're daily more aware of what we don't know. See, before, we had no clue either, but we were ignorant of our ignorance. As we progress, we discover more questions that don't seem to have answers.  So pray for wisdom in making choices that aren't black and white. Pray for our decisions with our doctors, and mostly pray for sweet Tiny. Her hair is coming back, and she's starting to talk about being able to put clips and bows on. She seems to be doing so well, and I don't want her to have to go through any unnecessary treatments or scans anymore. But I also know that the right thing to do is seldom the most convenient.

Check back on Monday for an update on the Chick-fil-a spirit night for Imogen on March 17!