Thursday, September 26, 2013

Update 9/26 - Monitoring

Imogen's fever is a bit back and forth, but she is on some antibiotics, and seems to be doing well.  As expected, her counts are low, particularly the white blood cells. They're still thinking the counts could drop more as the day goes on, so there's a chance we'll be operating out of the hospital for the next day or so.

We're not worried right now. Imm is sleeping on mom, dad goes back to work for a bit. We're just waiting to get more information from the tests and get moved over to the Aflac center (cancer city).

Thanks for praying! I will update this post throughout the day.

UPDATE 10:45a: Imm ate a bit, but fever still spiking, as high as 102.5º.  Imogen has said a couple of times that her leg hurts. Once about the right, a couple times for the left leg. Leg + fever is a bit confusing; it could be the tumor moving along nerves, or it could mean something completely different. Hard to tell. We're waiting on the cultures to see if there's any bacteria in her system.

UPDATE 4:30p: Once again, we've been pretty up and down with fever. It went all the way up to 103º this time, but Imogen seems to be doing ok now. The results came back negative for bacteria, which is excellent news.  Because "apparently in the medicine community, negative means good."

One quick scare we had was with Imm's port. The needle got a little dislodged, and the fluids were pooling up underneath her skin.  The nurses were going to have to deaccess, then reaccess her again to get it flowing correctly.  It's not a painful thing, but imagine being three years old with that going on. Thankfully, they were able to get it corrected by doing the medical equivalent of jiggling the handle, and all seems to be well on that front.

The biggest bits of news are that we will be sleeping here again tonight, [a room opened up in cancer city, praise the Lord] and Imm will need a blood transfusion to get her counts to bounce back. Pretty simple, actually. They just hang up a bag of blood, and faster than you can say Edward Cullen, she perks up and feels better.  Hopefully.

sleeping


3 comments:

  1. i gotta tell you, as a former peds hem/onc nurse, i love the way you break things down! and yes, negative is good! sometimes fever just causes generalized body pains...so not always something to worry about. but believe me, i know that's easier said than done. edward cullin. goodgrief. you're a nut. send her a hug xoxo

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  2. I was thinking the same thing as Paige..my kids both have achy legs and arms with fevers (praying that is it) Praying so many things over and for your family, but most of all for His Kingdom to come and penetrate every aspect of this.

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  3. I have been praying for Imm and your family since seeing Paige's post about you.
    Thanks for letting us be a part of your journey through your blog. I love your posts and humor! Praying tonight for rest and rising counts. We were just there last year with our oldest daughter. I'm happy to say she is a two time leukemia survivor. Stay strong!

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