"This is our life" –Update 9/8

As I write this, Imogen's temperature is coming in at 100.4.  We'll measure again in an hour. If it hasn't gone down, we're spending the night in the hospital. To say that our schedule–and even the concept of a schedule– has changed in the last month is an understatement.

It's been a great week at home, really. Imogen has done better with her walking, and this is the first sniff of a fever we've had. We're still in for a dog, but that didn't stop Imogen and Aaron from loving the snakes and lizards at the pet store.

The biggest thing of note is that Imogen's hair has started falling out in the last few days. And it's going quicker than we realized. Imogen, always the generous one, has liked the idea of another little girl needing to "borrow" her hair for a little while (and someone needs to borrow mine, too.) Today, it started coming out at the slightest touches.  So, our schedules change again.  A family photo shoot that was scheduled for next weekend is now tomorrow morning at 9am.  She probably won't have much by Friday.

One fun upside is we got to get her a a sassy haircut before it all goes. We weren't planning to do it so soon, but it was everywhere: in her face, on the floor, all over our clothes.  We went with a posh reverse bob, and I think it fits her personality quite well.

Because of the rise in temperature, Tam and I decided it was a good idea to go ahead and have that emergency bag packed after all. As we picked items for future overnight stays, I had the realization that this is our life now. The slightest aberration in Imogen's temperature, behavior, coloring or energy is a potential game-changer. I think we're ready for it, I do, and I'm certainly not complaining. If you've ever met my kids, you knew they're more than worth it. It's just different. I guess it's just made me look at commitments and grand plans differently, a "today has enough on its own" type of thing.

The week or so is pretty big, then.  We expect to do the head shaving.  It's a good thing we decided to spend Saturday morning letting Imogen pick out all the head decor she wanted at Claire's. She loved it.

Oh hey. Imogen's temperature is back down! Looks like our schedule stays the same for the time being. We'll post pics soon. You can bet they'll be cute.